Questions used a three point Likert-like scale and guardians indicated if they agreed with the item statement (yes), were not sure (unsure), or disagreed with the statement (no). The impact of telehealth implementation on underserved populations and no-show rates by medical specialty during the COVID-19 pandemic, Evolving healthcare delivery in neurology during the coronavirus disease 2019 (COVID-19) pandemic, What is coefficient alpha? Sections. Mutluer T, Doenyas C, Aslan Genc H. Behavioral implications of the COVID-19 process for autism Spectrum disorder, and Individuals comprehension of and reactions to the pandemic conditions. Five out of six found the Pandemic Intake questionnaire helpful in their care of their patients. kennedy krieger institute (baltimore, md) This page shows COVID-19 capacity for hospitals in Anne Arundel County, Baltimore County and Baltimore city in Maryland The colored icons on the map below indicate the hospital's bed occupancy, but do not represent local hospitals surge plans to accommodate more patients. Sex, race and age were not predictors. . The Kennedy Krieger Institute provides outpatient medical services and care for children and adolescents with disorders involving the brain, spinal cord and musculoskeletal systems. To increase cell size for statistical analyses, the Epigenetics, Metabolism and Sickle Cell clinics were combined to the category of Other, and American Indian/Alaska Native, Native Hawaiian, Other, Other Pacific Islander, and Hispanic races and ethnicities were also grouped together. doi: 10.1016/j.jpeds.2020.12.060, 7. The https:// ensures that you are connecting to the For medical advice, you can call healthdirect on 1800 022 222. More information can be found via the links below: Patients who have recovered from the COVID-19 virus are more likely to have long-term physical, cognitive and emotional effects that linger after recovery. Jared Kushner in the White House's Rose Garden . doi: 10.1136/bmjopen-2020-045343, 3. Treatment at Kennedy Krieger is tailored to individual needs and involves a big team. Find out what works well at Kennedy Krieger from the people who know best. Race, age, and clinic type were significant predictors, but not sex. Analyzing 2,589 child neurology telehealth encounters necessitated by the COVID-19 pandemic. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). By: Daily Record Staff Received: 2 May 2022; Accepted: 18 August 2022;Published: 6 October 2022. Patients with neurodevelopmental disorders are less able to tolerate mask wearing or observe social distancing requirements, exacerbating the risk of becoming infected with COVID-19 and the stress upon them and their families. 1800 020 080. doi: 10.1016/j.jad.2020.08.001, 17. Financial support. Help job seekers learn about the company by being objective and to the point. Why does COVID-19 affect patients with spinal cord injury milder? COVID-19 Testing. The complex, inter-related factors, unique to patients with neurodevelopmental disorders influence the impact of the COVID-19 pandemic. October 12, 2021 / 11:03 PM Flight Tracker. ", First published on October 12, 2021 / 11:03 PM. Development and implementation of the pandemic intake questionnaire at the institute during the COVID-19 Pandemic. CA Notify, Google and Apple's exposure notification system, alerts you if you were in close contact with someone who tests positive for COVID-19 while preserving your privacy. Results of provider feedback survey. doi: 10.1111/jpc.15285, 4. Avoid close contact with people who are sick. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Kennedy Krieger Institute, an internationally known, non-profit organization located in the greater Baltimore/Washington, D.C. region, transforms the lives of more than 25,000 individuals a year . Binary logistic regression identified significant predictors of guardian response; the statistical model included sex, age, race, and clinic type as covariates. All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Track your flight by Flight Number or by Departure and Arrival Airports COVID-19 Testing. Clinicians initiated the use of a questionnaire to ask guardians about COVID-19 related concerns prior to clinical visits. Franciosi EB, Tan AJ, Kassamali B, Leonard N, Zhou G, Krueger S, et al. Get fully vaccinated between December 15, 2021, and March 31, 2022. Table 1. This poses an issue for patients struggling to access telehealth services (6), specifically patients from underserved populations (7). Patients from CARD had higher reports of worsening behavior. Eight months after getting COVID-19, 15-year-old Chloe Devore is still working to get back to her normal self. Out of all respondents, 2.9% reported that their child had asthma/other lung disease and 0.2% reported their child having heart disease at the time of completing the questionnaire. Our Tips for Home and Familiespage features an assortment of resourcesfrom our programs, including blog posts, read aloud videos, behavioral health tips, and more. Kennedy Krieger has one of the only clinics in the country that treats children and young adults dealing with what's known as "long COVID," when some suffer from symptoms long after the initial . Families with infrequent access to email and non-English speaking families may have been less likely to participate. Clinic type was a significant predictor, but sex, age, and race were not (80.5% correctly classified, 2 (14, N=1,638)=158.6, p<0.001). M-Irfan Suleman, M.D., director of pediatric chronic pain interventional management at Johns Hopkins Children's Center and medical director of the multidisciplinary pediatric pain rehabilitation clinic at the Kennedy Krieger Institute, suggests ways to ease stress for children during COVID-19 vaccinations.. Every effort should be made to ensure that the vaccination procedure is not traumatic . You must have the heart, patience, understanding, and grit for this work. 111 online will not give you a diagnosis, but we will direct you to the best place to get help for your symptoms. Mucalo L, Brandow AM, Dasgupta M, Mason SF, Simpson PM, Singh A, et al. Twenty percent of guardians of CDL patients reported a worsening of behavior, while guardians of CARD patients (33%) were 2.05 times more likely to report worsening behavior, and respondents from the Spinal Cord clinic (3%) were 0.12 times less likely to report worsening behavior. These patients are at increased risk of co-morbidities, increasing their risk of contracting COVID-19. Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). This de-identified database was stored on a secure Institute shared drive, and analyzed within IBM SPSS 27. We also use third-party cookies that help us analyze and understand how you use this website. Responses were analyzed in relation to sex, age, race/ethnicity and clinic. Returning the questionnaire was voluntary and not required for the visit. Rehabilit. "I wasn't getting better, so I found out about Kennedy Krieger because they opened up their post-COVID clinic," Larson said. Rametta SC, Fridinger SE, Gonzalez AK, Xian J, Galer PD, Kaufman M, et al. Requests for Accommodation for MN Community Testing and Vaccination Sites. Most people can manage COVID-19 at home with support from their GP. But many don't about it, and that's why Kennedy Krieger is now trying to get the word out about it in schools. Those who need intensive therapy and rehabilitation may be recommended for inpatient admission to Kennedy Krieger. Asked March 11, 2022. Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact. Get the Latest from the CDC. The work is as they say: "It takes a special person". Moynihan R, Sanders S, Michaleff ZA, Scott AM, Clark J, To EJ, et al. You can also call the COVID-19 Hotline at 888-535-6136 or email us at COVID19@michigan.gov. Regarding appetite, 4.98% (n=81) reported their child experienced worsened appetite. If you would like to request an accommodation for a person with a disability related to the Center's COVID Safety Plan, please contact the Office of Accessibility in advance of your visit at 202-416-8727 or access@kennedy-center.org . Most program directors reported improved patient care as a result. The raw data supporting the conclusions of this article will be made available by the authors, without undue reservation. Any product that may be evaluated in this article, or claim that may be made by its manufacturer, is not guaranteed or endorsed by the publisher. It is mandatory to procure user consent prior to running these cookies on your website. In addition, researchers seek to assess perspectives about COVID-19 testing, and vaccines among parents of students with disabilities who do not return to in-person learning. the contents by NLM or the National Institutes of Health. In a survey of medical providers, five out of six program directors who received the responses to this survey found this questionnaire helpful in caring for their patients. Out of all respondents, 2.9% reported that their child had asthma/other lung disease and 0.2% reported their child having heart disease at the time of completing the questionnaire. Providers addressed this concern by making referrals to other clinics. Funding comes fromtheNIH, which has awardedup to $33 million over two yearsforprojects at 10 institutions across eight statesas part ofitsSafe Return to School Diagnostic Testing Initiativeand through itsRapid Acceleration of Diagnostics Underserved Populations(RADx-UP)program. By: Daily Record Staff May 5, 2021. Measures implemented by program directors to address COVID-19 concerns brought up in the pandemic intake questionnaire. The impact of the novel coronavirus disease 2019 on therapy service delivery for children with disabilities. Helps to reduce your risk of developing coronavirus and makes your symptoms milder if you do Coronavirus (COVID-19): Treatments How to access coronavirus treatments if you're at highest risk Coronavirus (COVID-19): Longer-term effects (long COVID) Learn about the symptoms of long COVID and how you can manage them If you already have an appointment, theres no need to cancel. The Center for Development and Learning (CDL) sees patients diagnosed with cognitive impairments, anxiety, attention deficit hyperactivity disorder, learning disorders, language delays and social difficulties. Press Release / March 17, 2020. Here's the Coronavirus Helpline for persons with disabilities in Tamil Nadu. AC, ML, TZ, PV, HB, CM, BC, EL, MR, DM, and PL contributed to conception and design of the study. Get your seasonal flu vaccine. For new appointments, we will advise how the appointment will be delivered and provide easy instructions for all telephone or video appointments. Meetings should be conducted virtually whenever possible, especially during times of increased transmission. If you have COVID-19 you should try to stay at home. Rametta SC, Fridinger SE, Gonzalez AK, Xian J, Galer PD, Kaufman M, et al. 988 Suicide & Crisis Lifeline: If your life or someone else's is in imminent danger, please call 911. 8600 Rockville Pike Finally, 4% (n=66) of guardians indicated difficulty accessing surgical services during the pandemic. West Bengal. Questions used a three point Likert-like scale and guardians indicated if they agreed with the item statement (yes), were not sure (unsure), or disagreed with the statement (no). Clinic type was a significant predictor; guardians of CARD patients (22%) were 2.2 times more likely to report worsening sleep compared to CDL patients (12%). Chi-square analysis determined if responses differed between those in more or less medically complicated clinics. Reports of worsening in behavior during the pandemic was significantly different across race and ethnicity (p=0.002), type of clinic (p=0.014), and across age (p=0.047). A total of 3,153 questionnaires were returned with a 33.6% response rate (N=1,643; see Table1). This study suggests that patients from the Sturge-Weber clinic and patients that were Black had higher reports of worsening appetite. This toolkit aims to help health departments prevent the spread of COVID-19 at multi-day events that are expected to draw large numbers of people. The virus can cause mild to serious illness, and even death. COVID-19. This is an open-access article distributed under the terms of the, GUID:CE3DC7E1-E533-492A-963C-FBB9BAFED580, GUID:33FE3EAD-8EC4-4500-A342-7D5CC5C325EC, pandemic (COVID-19), pediatrics - children, rehabilitation, SARS CoV 2, neurodevelomental disorders, Intellectual and developmental disability and COVID-19 case-fatality trends: triNetX analysis. A total of 3,153 questionnaires were returned with a 33.6% response rate (N=1,643; see Table1). A significant main effect for time (early vs. later pandemic) was only observed in the ability to access surgeries over time (p=0.027); more respondents reported difficulty accessing surgeries between May and August (39.4%) than between September and December (13.6%). The Supplementary Material for this article can be found online at: https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/full#supplementary-material, National Library of Medicine Due to the pandemic, many of these services transitioned to telerehabilitation (15). To be eligible for the HealthChoice COVID-19 Gift Card Program you must: Be enrolled in HealthChoice. Copyright 2021 Scripps Media, Inc. All rights reserved. There was no difference in perceived increased risk of contracting COVID-19 across race, age and sex; this data contradicts previously reported information where Black and Asian individuals were at higher risk (14). The CARD program director reported making more referrals to the crisis center and care coordination to increase resources and address these behavioral changes (17). Program directors made more appointments available and provided COVID-19 education to their patients. We successfully implemented a pre-visit Pandemic Intake questionnaire to quickly and systematically inform provider awareness of COVID-19 related patient concerns; the majority of program directors reported that this information helped them provide optimal care. 2-3 hours long, exhausting, and hard. Why does COVID-19 affect patients with spinal cord injury milder? All authors contributed to the article and approved the submitted version. For the patients, families, students and staff of Kennedy Krieger Institute. Evolving healthcare delivery in neurology during the coronavirus disease 2019 (COVID-19) pandemic. Impact of the COVID-19 pandemic on the well-being of children with neurodevelopmental disabilities and their parents. The clinics noted as medically more complicated include: Neurogenetics, Neurology, Spinal Cord Injury, Sturge-Weber syndrome, Epigenetics, Metabolism and the Sickle Cell clinic. Three hundred and thirty-seven respondents (20.6%) agreed (yes) or were unsure if their child was at increased risk of contracting COVID-19. J Autism Dev Disord. For general advice, you can call the National Coronavirus Helpline on 1800 020 080. Analyzing 2,589 child neurology telehealth encounters necessitated by the COVID-19 pandemic. EClin Med. The Center of Disease Control determined that patients with neurological conditions are high-risk and more susceptible to severe complications, when infected with COVID-19 (4). Live agents are available: Monday - Friday 8am to 5pm EST If you have an urgent medical need, please reach out to your healthcare provider. Twenty percent (n=322) reported a worsening in their child's mood during the pandemic; (model correctly classified 80.2% of the sample, 2 (14, N=1627)=43.2, p<0.001). Pandemic Intake questionnaire response data were de-identified, linked with Contact Serial Number, and merged with corresponding demographic information from the healthcare record system of EPIC. Methods: A Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. Race, age, and clinic type were significant predictors; sex was not. A Pandemic Intake questionnaire regarding COVID-19 related medical concerns of guardians of patients was distributed using Qualtrics. (2021) 11(9):1139. doi: 10.3390/brainsci11091139, Keywords: pandemic (COVID-19), pediatrics - children, rehabilitation, SARS CoV 2, neurodevelomental disorders, Citation: Vedmurthy P, Murray C, Chen B, Asiedu A, Baranano K, Bay M, Belcher H, Burton V, Conlon C, Fine A, Gill R, Harris J, Hart K, Inches S, Johnson J, Lance E, Lipkin PH, Menon DU, McIntyre T, Rajaprakash M, Recio A, Singer HS, Smegal L, Smith-Hicks CL, Vernon H, Wilms Floet AM, Wong J, Yelin K, Leppert MLO, Zabel TA and Comi AM (2022) Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic. Finally, 4% (n=66) of guardians indicated difficulty accessing surgical services during the pandemic. doi: 10.1093/ptj/pzaa151, 16. Covid . Background: The COVID-19 pandemic uniquely affects patients with neurologic and developmental disabilities at the Kennedy Krieger Institute. The pandemic's stay-at-home order significantly impacted mental health, routines and quality of life. There was a 1.006 cumulative increase in reports of worsened appetite with increase in age by month (Table2). Masi A, Mendoza Diaz A, Tully L, Azim SI, Woolfenden S, Efron D, et al. Respondents from the Tourette's (8%), Spinal Cord (12%), and Sturge Weber syndrome (17%) clinic were 3.867.37 time more likely to report difficulty in accessing surgeries compared to respondents from CDL (3%) (Table2). Kennedy Krieger has one of the only clinics in the country that treats children and young adults dealing with what's known as "long COVID," when some suffer from symptoms long after the initial infection. Unbelievably, although he cautioned against panic-buying, he also suggested it was a good time to stock up before the order kicked in at 5 p.m. Tuesday. Downvote. Uttarakhand. For accommodation requests for the MN Community Testing and Vaccination sites, call the Minnesota Department of Health COVID-19 Public Hotline at 1-833-431-2053 between 9 a.m. and 5 p.m. on Monday, Wednesday, and Friday; 9 a.m. - 7 p.m. on Tuesday and Thursday. Results: Analysis included responses from 1643 guardians of pediatric patients (mean age 9.5 years, range 021.6 years). This study reports worsened sleep in patients at CARD; previous research found patients with ADHD and ASD to report high rates of delays in bedtime, decreased sleep duration and increased sleep disorders (18). 5.7% reported that this was due to asthma/other lung disease and 0.7 reported that was due to heart disease. The mean age was 9.5 years (range 021.6 years); 1,119 (68.1%) were males and 524 (31.9%) were female. Kennedy claimed that the COVID-19 vaccine is the deadliest vaccine ever made according to deaths reported in VAERS. Returning the questionnaire was voluntary and not required for the visit. For patients seen in multiple clinics or multiple times, the first survey answers were analyzed. The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. For the past three years, we have adjusted COVID-19 protocols, policies and guidance at Johns Hopkins Medicine (JHM) to protect the health and safety of our patients, colleagues and community members, especially those most at risk for severe infection. The statistical model correctly classified 95% of the sample, 2 (14, N=1,627)=28.2, p=0.013). Limitations in social interaction impacted the quality of life, and worsening behavior from patients at the Center for Autism and Related Disorders (CARD). Telemedicine is a safe and satisfactory alternative to in-person appointments and encourages patients to discuss their concerns relating to COVID-19 risk (13). Program directors worked to address these concerns and there was a significant decrease in the number of respondents unable to access surgeries in the later months of the pandemic (September to December). Questions asked guardians to identify a worsening, improvement, or no change in quality of life due to the COVID-19 pandemic. Most program directors reported improved patient care as a result. While the effects of COVID might not be as severe in most kids, doctors say there is a small group of kids who are not . Health and wellbeing. Click herefor more information about inpatient hospital admissions. Free text boxes were included to allow the taker to expand on their concerns. But opting out of some of these cookies may have an effect on your browsing experience. Members of the public may attend classes or events, but must register in advance. Children who have recovered are no exception. We are continuously monitor and respond to the changing public health environment. Responses on the Pandemic intake questionnaire were dichotomized; for example Do you consider the patient to be at increased risk for COVID-19 related complications?, yes and unsure responses were coded as an affirmative response and no was coded as a negative response. For General Inquiries. Telemed J E Health. / CBS Baltimore. (1993) 78(1):6. doi: 10.1037/0021-9010.78.1.98, 10. Most providers reported that changes in sleep (66.7%) and behavior (66.7%) were the most frequent COVID-19 related concerns for their patients.
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